Park Play Date

We had a fun park play date with the girls' triplet boyfriends last week. My friend, Deana and I were very proud of ourselves for wrangling six toddlers with just the two of us. We actually make a really good team. She mans one end of the park while I work the other. No toddler left behind and we just constantly count to six!  hahahaha...... They usually end up staying really close to each other. 

The kiddos did really well. We were at the park for just about an hour and we didn't have one meltdown. My girls are getting to know D, and her boys are getting to know me. It's all working out great. We really enjoy hanging with these sweet boys! 

Back to reality

Morgan had her psych evaluation on Tuesday morning. We were surprised, but then also not surprised that she was diagnosed with PDD-NOS. I think I was in denial leading up to her appointment. It's just the more I read about autism and PDD-NOS, the more I started to associate Morgan with some of these characteristics.

Here is the definition of PDD-NOS. This is copied from the Autism Speaks website.

Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS) is one of the autism spectrum disorders and is used to describe individuals who do not fully meet the criteria for autistic disorder or Asperger syndrome.

PDD-NOS may be thought of as “subthreshold autism," or a diagnosis one can give a person who has “atypical symptomatology.” ²  In other words, when someone has autistic characteristics but some of their symptoms are mild, or they have symptoms in one area (like social deficits), but none in another key area (like restricted, repetitive behaviors), they may be given the PDD-NOS label.

The last 24 hours have been very emotional. I've cried, been angry, felt confused, and have been in denial. Then I get mad or sad again. It's been a tough pill to swallow. The good thing in all this is that Dr. M isn't 100% confident that this is, for sure, the right diagnoses long term. She fits the description right now. However, he thinks she is borderline enough that it could go either way as she develops. He has recommended that we re-test in about 2 years right before she turns 5.

Right now, I'm trying to just take all of this in. I wanted to be able to share the reasons why she was diagnosed, but I don't have a copy of the psychologists report yet. Once I get the report, I can really get into the reasoning behind it. Unfortunately, after talking extensively with Dr. M, it just seems like he's right on the money with this. I hope with all my heart that he is wrong and that she will make amazing strides with continued therapy. He has seen cases where it's just tough to diagnose in a 2 year old and that after a couple of years, the diagnoses doesn't make sense. But then he's also seen cases where it has turned into a full autism diagnoses.

This will probably place her in the same 4 day a week preschool program as Rachel. They are both categorized as "severely delayed" with their language skills. Dr. M feels like Morgan is way too advanced to place her in the class with the autistic children. I have a call out to the school district to discuss this as well as an IFSP meeting with the girls' therapy team and case worker next week. I am feeling a little bit better after talking this all out with Amy, the girls' OT. She and I have come up with some goals and a plan as to how we want to move forward with their therapies. We plan on making the most of the last 3 1/2 months we still have before their services are transferred.

I will post in more detail as soon as I get Morgan's report. I can't think of everything off the top of my head right now so I'm not going to try.

Sophia had her evaluation today. She soared through it with flying colors. She has some mild sensory issues and is classified as just having a "mild speech delay," which makes me happy.

Right now, the plan is to take this one day at a time. I'm seeking support through our local Warmline chapter that offers help for families with special needs children. It's too much to try to look too far into the future at this point. "One day at a time" is the new motto!

Good news!!!

I can't even begin to express with words how thankful I am that Rachel does not have autism. She also does not have PDD-NOS or any other type of PDD. She does have sensory processing disorder as well as auditory issues and language delays. These are all things that can be treated through the therapy she is already receiving.

For the first time in over a year, I am feeling free of the stress and worry that I had for her. It's been a long road with my precious Rachel.  Last year at this time, we were going through worry from the tumor on her ankle. There were several months of waiting and thinking about biopsy results. At the same time, she was being seen by several therapists that were all concerned because she shows signs of autism. The question was always there even though a lot of her characteristics and behaviors were unlike those of children with autism. But then of course, some of her characteristics were in line with them. I'm so glad that the question has finally been answered once and for all. Now we can focus on the sensory, auditory, and language issues.

Knowing that Rachel was not diagnosed takes away the majority of concern that I had for Sophia and Morgan. The psychologist and the girls' therapy team still want them to undergo the same testing. They will likely not be diagnosed, but just by doing this testing, it will help us to better understand the areas we need to work on. Their appointments are next week.

I am really proud of Rachel for doing so well. Her evaluation lasted just about 3 hours. She didn't have any meltdowns or tantrums. She was such a good girl, plus she had a room full of toys all to herself. About 2 hours in, she did say... "A truck, cars, home." That meant she wanted to go home in Daddy's truck.

One of the main reasons several of the therapists thought she could have autism or PDD-NOS is because of her eating issues. Dr. M explained that children with the same sensory processing disorder have issues with food and all of the different textures. Some of these children are even mis-diagnosed with autism because their symptoms are alike. The good news is that there is a light at the end of the tunnel. When Rachel's language skills improve, we will be able to talk about foods and even let her help choose what she would like to try. We're told it's not going to be an easy battle, but that she will improve with time.

I am very relieved and it really feels as if a huge weight has been lifted off of my chest. I feel like now that we know what she is dealing with, we will be able to help her now and make some good progress.

When we left the psychologist's office, I had a good cry. It was definitely much needed relief for my baby girl who has been through enough in her almost 3 years! I look forward to watching her blossom when she starts school in February!

Ready or not....

In a few days, we start the process of the girls' pysch evaluations to determine if they are on the autism spectrum,  have aspergers, PDD-NOS, or any other diagnoses to try and find out what, if anything, is causing their developmental and speech delays.

Rachel has the first appointment on Wednesday. Needless to say, my stomach is in knots and I have a lot of anxiety about it. I know this isn't going to change who she is or change our life right now. If anything, I think some sort of diagnoses would only help us to her her. I just can't even describe the sense of overwhelming feelings I am having about this.

It's not just Rachel that I have anxiety about. It's all three. They are my babies. Dealing with the fact that one or all of them could be labeled as "special needs," is heart breaking. I know things could be worse, so I am of course incredibly thankful for their health. But I just want the best for my girls as all mothers would. I don't want them to struggle.

I had a meeting last week with two of the girls' therapists. They know how stressed out I am over the testing and were discussing what to expect as well as how to navigate the girls' upcoming IEP meeting with the school district. This meeting made me realize what an awesome team we have fighting for our girls. Both of the girls' OT's have offered to keep in contact with me after the girls turn three and will no longer be in their program. They want to be there for us to offer advice or just a comforting ear. I am so thankful for them. I know we aren't alone in this.

They also referred me to a local support network for parents of children with special needs. I've already made friends with one of the mom's (Kathy)  in the girls' play gym class who is a member of the network. I'm going to attend one of their get togethers so I can connect with some other local moms going through some of the same things we are. My multiples club has been such a great support to me so I know a similar group for parents of children like mine will be helpful. We've already had a couple of play dates with Kathy and her son, and it's been just what I've needed to feel a sense of normalcy. I know I've said that it's hard not to compare the girls to other toddlers their age, but I always do. On these recent play dates,  I found myself so relaxed and happy hanging out with another mom who totally "gets it" with what we are going through. She and her son are going through the same thing. Both of us mentioned that it felt good not to have to see "normal developing toddlers the same age" and be comparing them the whole time to ours that are somewhat behind.  In fact, Rachel will be in the same preschool program as Kathy's son since we are practically neighbors. I'm glad to have met her.

Sophia and Morgan's appointments are next week. I'm getting myself mentally prepared for whatever news comes our way. I'm going to do my best to remain optimistic.

However, if I eat lots of brownies this week........... um..... I can't be held accountable for it!